{"id":10182,"date":"2021-01-06T00:10:34","date_gmt":"2021-01-06T05:10:34","guid":{"rendered":"https:\/\/nebula.org\/blog\/nebuleuse-genomique-en-sante-2-0\/"},"modified":"2021-02-20T20:43:02","modified_gmt":"2021-02-21T01:43:02","slug":"nebuleuse-genomique-en-sante-2-0","status":"publish","type":"post","link":"https:\/\/nebula.org\/blog\/fr\/nebuleuse-genomique-en-sante-2-0\/","title":{"rendered":"Nebula Genomics \u00e0 Health 2.0"},"content":{"rendered":"

Par Kamal Obbad<\/p>\n

Aujourd’hui, j’\u00e9tais \u00e0 la conf\u00e9rence Health 2.0 pour pr\u00e9senter la plate-forme que notre soci\u00e9t\u00e9, Nebula Genomics, a construite pour aider \u00e0 inaugurer l’\u00e8re du s\u00e9quen\u00e7age g\u00e9nomique personnel.<\/p>\n

Nous sommes absolument ravis que le public a choisi Nebula comme lancement! gagnant<\/a> apr\u00e8s avoir vu comment fonctionneront notre plateforme et le march\u00e9 des donn\u00e9es g\u00e9nomiques et comment cela r\u00e9soudra certains des plus grands probl\u00e8mes auxquels sont confront\u00e9s les chercheurs et l’ensemble de l’industrie aujourd’hui.<\/p>\n

\u00c0 l’heure actuelle, si les chercheurs veulent acc\u00e9der \u00e0 des donn\u00e9es g\u00e9nomiques \u00e0 grande \u00e9chelle, ils ont deux probl\u00e8mes. Le premier est que le disponible les donn\u00e9es sont<\/span> fragment\u00e9 entre diff\u00e9rentes bases de donn\u00e9es (et souvent incompatibles), ce qui rend l’acc\u00e8s extr\u00eamement difficile et co\u00fbteux. La seconde est une p\u00e9nurie de donn\u00e9es significatives, car les consommateurs h\u00e9sitent \u00e0 partager des donn\u00e9es faute de confiance.<\/p>\n

Notre plateforme r\u00e9pond \u00e0 ces deux probl\u00e8mes.<\/p>\n

Nebula a d\u00e9velopp\u00e9 un march\u00e9 de donn\u00e9es g\u00e9nomiques sans confiance, construit sur un syst\u00e8me d\u00e9centralis\u00e9 avec blockchain. Cette plate-forme permet aux propri\u00e9taires de donn\u00e9es de partager leurs donn\u00e9es g\u00e9nomiques – le g\u00e9nome entier, pas un \u00e9chantillon – avec des chercheurs ou d’autres acheteurs de donn\u00e9es tout en conservant le contr\u00f4le et la confidentialit\u00e9 de leurs donn\u00e9es. Nous avons \u00e9galement renvers\u00e9 le mod\u00e8le \u00e9conomique. Avec la plateforme Nebula, les donn\u00e9es propri\u00e9taire<\/em> est compens\u00e9e et les donn\u00e9es acheteur<\/em> paie pour la valeur qu’ils re\u00e7oivent.<\/p>\n

Les personnes souhaitant rejoindre le march\u00e9 Nebula utiliseront notre portail pour cr\u00e9er un dossier contenant des informations sur leur \u00e9tat de sant\u00e9 g\u00e9n\u00e9ral. le les donn\u00e9es sont<\/span> crypt\u00e9 pour garantir qu’il est priv\u00e9. Les acheteurs de donn\u00e9es tels que les chercheurs pourront utiliser le portail pour lancer une recherche d’enregistrements r\u00e9pondant \u00e0 des crit\u00e8res sp\u00e9cifiques. L’acheteur de donn\u00e9es sait uniquement s’il existe ou non des correspondances; ils ne voient jamais les donn\u00e9es et ne connaissent pas non plus l’identit\u00e9 des personnes li\u00e9es \u00e0 ces enregistrements.<\/p>\n

Les acheteurs de donn\u00e9es peuvent alors initier une transaction via la place de march\u00e9 de la plateforme en cr\u00e9ant une offre de compensation \u00e0 l’individu, via la blockchain. Si l’individu n’a pas encore fait s\u00e9quencer son g\u00e9nome complet, l’acheteur peut offrir une compensation pour ce processus, qui peut \u00e9galement \u00eatre organis\u00e9e via notre plateforme. Si le propri\u00e9taire des donn\u00e9es accepte l’offre, la plateforme ex\u00e9cutera la transaction puis fournira le m\u00e9canisme d’analyse des donn\u00e9es.<\/p>\n

Tout au long de ce processus, le propri\u00e9taire des donn\u00e9es a une transparence et un contr\u00f4le complets. Ils pourront voir qui fait l’offre, la valeur de cette offre et la finalit\u00e9 de l’acheteur pour les donn\u00e9es. C’est enti\u00e8rement \u00e0 l’individu d’accepter ou non en fonction de la valeur de l’offre ou du but de la demande. L’acheteur, en revanche, ne conna\u00eet jamais l’identit\u00e9 du propri\u00e9taire et n’a jamais acc\u00e8s au formulaire \u00abtexte brut\u00bb des donn\u00e9es: tout se fait \u00e0 l’int\u00e9rieur de la plateforme.<\/p>\n

En donnant aux individus le contr\u00f4le, la confidentialit\u00e9 et la compensation de leurs donn\u00e9es, la plateforme Nebula incite fortement les consommateurs \u00e0 s\u00e9quencer leurs g\u00e9nomes et \u00e0 leur donner acc\u00e8s aux chercheurs. C’est ce qu’il faudra pour atteindre l’\u00e9chelle de donn\u00e9es qui sera significative pour la recherche. Les acheteurs de donn\u00e9es, \u00e0 leur tour, b\u00e9n\u00e9ficieront d’un acc\u00e8s moins cher et plus facile aux donn\u00e9es \u00e0 grande \u00e9chelle sans se soucier de la s\u00e9curit\u00e9 ni traiter d’innombrables sites et interm\u00e9diaires incompatibles, acc\u00e9l\u00e9rant ainsi les progr\u00e8s de la recherche, du d\u00e9veloppement de m\u00e9dicaments, des applications cliniques et de la m\u00e9decine personnalis\u00e9e.<\/p>\n

Nous travaillons d\u00e9j\u00e0 avec des partenaires tels que Bitfury, Insilico Medicine et Veritas Genetics pour fournir une gamme d’outils d’analyse et d’int\u00e9gration de donn\u00e9es de sant\u00e9 via notre plate-forme, et nous annoncerons plus de partenaires et de participants au march\u00e9 dans un proche avenir.<\/p>\n

Si vous voulez en savoir plus sur ce que nous faisons et comment cela va changer la m\u00e9decine, visitez notre site Internet<\/a> !<\/p>\n","protected":false},"excerpt":{"rendered":"

Par Kamal Obbad Aujourd’hui, j’\u00e9tais \u00e0 la conf\u00e9rence Health 2.0 pour pr\u00e9senter la plate-forme que notre soci\u00e9t\u00e9, Nebula Genomics, a construite pour aider \u00e0 inaugurer l’\u00e8re du s\u00e9quen\u00e7age g\u00e9nomique personnel. Nous sommes absolument ravis que le public a choisi Nebula …<\/p>\n

Nebula Genomics \u00e0 Health 2.0<\/span> Lire la suite \u00bb<\/a><\/p>\n","protected":false},"author":2,"featured_media":4310,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"om_disable_all_campaigns":false,"site-sidebar-layout":"default","site-content-layout":"default","ast-global-header-display":"","ast-banner-title-visibility":"","ast-main-header-display":"","ast-hfb-above-header-display":"","ast-hfb-below-header-display":"","ast-hfb-mobile-header-display":"","site-post-title":"","ast-breadcrumbs-content":"","ast-featured-img":"","footer-sml-layout":"","theme-transparent-header-meta":"default","adv-header-id-meta":"","stick-header-meta":"","header-above-stick-meta":"","header-main-stick-meta":"","header-below-stick-meta":"","_FSMCFIC_featured_image_caption":"","_FSMCFIC_featured_image_nocaption":"","_FSMCFIC_featured_image_hide":"","footnotes":""},"categories":[4985],"tags":[],"class_list":["post-10182","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-news-fr"],"yoast_head":"\nNebula Genomics \u00e0 Health 2.0 - Nebula Genomics Blog<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/nebula.org\/blog\/fr\/nebuleuse-genomique-en-sante-2-0\/\" \/>\n<meta property=\"og:locale\" content=\"fr_FR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Nebula Genomics \u00e0 Health 2.0 - Nebula Genomics Blog\" \/>\n<meta property=\"og:description\" content=\"Par Kamal Obbad Aujourd’hui, j’\u00e9tais \u00e0 la conf\u00e9rence Health 2.0 pour pr\u00e9senter la plate-forme que notre soci\u00e9t\u00e9, Nebula Genomics, a construite pour aider \u00e0 inaugurer l’\u00e8re du s\u00e9quen\u00e7age g\u00e9nomique personnel. 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