{"id":10939,"date":"2021-01-06T00:38:16","date_gmt":"2021-01-06T05:38:16","guid":{"rendered":"https:\/\/nebula.org\/blog\/sequencage-anonyme\/"},"modified":"2021-02-20T20:40:49","modified_gmt":"2021-02-21T01:40:49","slug":"sequencage-anonyme","status":"publish","type":"post","link":"https:\/\/nebula.org\/blog\/fr\/sequencage-anonyme\/","title":{"rendered":"Le s\u00e9quen\u00e7age anonyme maintenant disponible"},"content":{"rendered":"\n

Nous avons lanc\u00e9 Nebula Genomics avec pour mission de cr\u00e9er une soci\u00e9t\u00e9 de g\u00e9nomique personnelle ax\u00e9e sur la confidentialit\u00e9. Aujourd’hui, nous sommes ravis de lancer une nouvelle fonctionnalit\u00e9 de protection de la vie priv\u00e9e – tests g\u00e9n\u00e9tiques anonymes<\/a> . Les utilisateurs de Nebula pourront d\u00e9sormais acheter le s\u00e9quen\u00e7age du g\u00e9nome entier et soumettre leur \u00e9chantillon sans avoir \u00e0 r\u00e9v\u00e9ler d’informations les concernant, comme le nom, l’adresse ou le num\u00e9ro de carte de cr\u00e9dit. Nebula Genomics est la premi\u00e8re soci\u00e9t\u00e9 de g\u00e9nomique personnelle \u00e0 proposer des tests g\u00e9n\u00e9tiques anonymes. <\/p>\n\n

Nous permettons \u00e0 nos utilisateurs de prot\u00e9ger leur vie priv\u00e9e en permettant des paiements pseudo-anonymes et la collecte d’\u00e9chantillons. Ceci est activ\u00e9 par l’utilisation de crypto-monnaies telles que Bitcoin. Les transactions avec les crypto-monnaies reposent sur des adresses blockchain qui ne peuvent avoir aucun lien avec des identit\u00e9s r\u00e9elles telles que le nom, l’adresse ou les comptes bancaires. Pour les utilisateurs qui ne poss\u00e8dent pas de crypto-monnaies, nous vous recommandons d’utiliser une carte de cr\u00e9dit pr\u00e9pay\u00e9e (par exemple privacy.com<\/a> ).<\/p>\n\n

Nous compl\u00e9tons les paiements anonymes par une collecte d’\u00e9chantillons anonyme en livrant nos kits de collecte de salive \u00e0 Bo\u00eetes postales USPS<\/a> . De plus, nous vous recommandons d’utiliser une adresse e-mail qui n’est associ\u00e9e \u00e0 aucune information personnelle et un VPN (r\u00e9seau priv\u00e9 virtuel) lors de l’achat et de l’enregistrement (Figure 1). <\/p>\n\n

\"\"
Figure 1. Les paiements en crypto-monnaie ainsi que d’autres approches de pr\u00e9servation de la vie priv\u00e9e peuvent permettre des tests g\u00e9n\u00e9tiques anonymes. <\/figcaption><\/figure>\n\n

Les tests g\u00e9n\u00e9tiques anonymes peuvent \u00e9liminer plusieurs vuln\u00e9rabilit\u00e9s potentielles auxquelles les individus sont expos\u00e9s lors de l’achat de services de tests g\u00e9n\u00e9tiques. Plus important encore, permettre aux individus de rester anonymes \u00e9liminerait la d\u00e9pendance \u00e0 l’\u00e9gard de la d\u00e9sidentification des donn\u00e9es par les soci\u00e9t\u00e9s de g\u00e9nomique personnelle avant le partage des donn\u00e9es avec les chercheurs.<\/p>\n\n

Si les achats de services de tests g\u00e9n\u00e9tiques peuvent \u00eatre efficacement anonymis\u00e9s, les donn\u00e9es g\u00e9nomiques elles-m\u00eames ne le peuvent pas, puisqu’elles contiennent des marqueurs g\u00e9n\u00e9tiques uniques et h\u00e9r\u00e9ditaires. Ainsi, comme l’anonymisation des donn\u00e9es g\u00e9nomiques \u00e0 elle seule ne suffit pas \u00e0 prot\u00e9ger la vie priv\u00e9e, le partage des donn\u00e9es g\u00e9nomiques doit se faire de mani\u00e8re contr\u00f4lable, transparente et pr\u00e9servant la confidentialit\u00e9.<\/p>\n\n

Dans un article publi\u00e9 cette semaine dans Biotechnologie de la nature<\/a><\/em> , nous d\u00e9crivons comment diverses techniques cryptographiques peuvent \u00eatre appliqu\u00e9es pour rendre le partage de donn\u00e9es g\u00e9nomiques personnelles contr\u00f4lable, transparent et s\u00e9curis\u00e9. Nous appelons \u00e9galement d’autres soci\u00e9t\u00e9s de g\u00e9nomique personnelle s’adressant directement aux consommateurs \u00e0 donner \u00e0 leurs clients le contr\u00f4le de leurs donn\u00e9es personnelles afin de r\u00e9pondre aux probl\u00e8mes de confidentialit\u00e9 courants qui sont devenus un obstacle \u00e0 une adoption plus large des tests g\u00e9n\u00e9tiques.<\/p>\n\n

Nebula Genomics a d\u00e9j\u00e0 impl\u00e9ment\u00e9 une couche de contr\u00f4le d’acc\u00e8s bas\u00e9e sur la blockchain qui permet un partage de donn\u00e9es transparent et contr\u00f4lable et nous d\u00e9veloppons actuellement des approches pour l’analyse s\u00e9curis\u00e9e des donn\u00e9es. <\/p>\n\n

Visitez notre site Web pour en savoir plus sur tests g\u00e9n\u00e9tiques anonymes<\/a> .<\/p>\n","protected":false},"excerpt":{"rendered":"

Nous avons lanc\u00e9 Nebula Genomics avec pour mission de cr\u00e9er une soci\u00e9t\u00e9 de g\u00e9nomique personnelle ax\u00e9e sur la confidentialit\u00e9. Aujourd’hui, nous sommes ravis de lancer une nouvelle fonctionnalit\u00e9 de protection de la vie priv\u00e9e – tests g\u00e9n\u00e9tiques anonymes . Les …<\/p>\n

Le s\u00e9quen\u00e7age anonyme maintenant disponible<\/span> Lire la suite \u00bb<\/a><\/p>\n","protected":false},"author":2,"featured_media":4810,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"om_disable_all_campaigns":false,"site-sidebar-layout":"default","site-content-layout":"default","ast-global-header-display":"","ast-banner-title-visibility":"","ast-main-header-display":"","ast-hfb-above-header-display":"","ast-hfb-below-header-display":"","ast-hfb-mobile-header-display":"","site-post-title":"","ast-breadcrumbs-content":"","ast-featured-img":"","footer-sml-layout":"","theme-transparent-header-meta":"default","adv-header-id-meta":"","stick-header-meta":"","header-above-stick-meta":"","header-main-stick-meta":"","header-below-stick-meta":"","_FSMCFIC_featured_image_caption":"","_FSMCFIC_featured_image_nocaption":"","_FSMCFIC_featured_image_hide":"","footnotes":""},"categories":[4985],"tags":[],"class_list":["post-10939","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-news-fr"],"yoast_head":"\nLe s\u00e9quen\u00e7age anonyme maintenant disponible - Nebula Genomics Blog<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/nebula.org\/blog\/fr\/sequencage-anonyme\/\" \/>\n<meta property=\"og:locale\" content=\"fr_FR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Le s\u00e9quen\u00e7age anonyme maintenant disponible - Nebula Genomics Blog\" \/>\n<meta property=\"og:description\" content=\"Nous avons lanc\u00e9 Nebula Genomics avec pour mission de cr\u00e9er une soci\u00e9t\u00e9 de g\u00e9nomique personnelle ax\u00e9e sur la confidentialit\u00e9. 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