{"id":2345,"date":"2020-09-21T09:00:08","date_gmt":"2020-09-21T13:00:08","guid":{"rendered":"https:\/\/nebula.org\/blog\/?p=2345"},"modified":"2020-12-26T23:55:55","modified_gmt":"2020-12-27T04:55:55","slug":"oasis-labs-partnership","status":"publish","type":"post","link":"https:\/\/nebula.org\/blog\/oasis-labs-partnership\/","title":{"rendered":"Giving Users Control of their Genomic Data"},"content":{"rendered":"\n

Nebula Genomics integrates with Oasis Labs to give users first-of-its-kind control of their personal genomic data.<\/p>\n\n\n\n

From massive data breaches to sales of private data, users and companies are now more concerned than ever with keeping personal health information private and secure. For example, nearly 80% of respondents in a recent Pew Research study<\/a> noted the concern of how businesses were using consumer data. Sensitive information can take the form of electronic medical records, and more recently, personal genomic data.<\/p>\n\n\n\n

While direct-to-consumer genetic testing companies have opened up an entirely new world of information on ancestry and disease risk for individuals, many have come under fire for violating user privacy and breaching user trust. For example, one genealogy company was affected by a security breach<\/a> that compromised the personal information of tens of millions of users, and another DNA testing company became subject to an investigation<\/a> by the Federal Trade Commission over its policy for sharing genetic data.<\/p>\n\n\n\n

\u201cThose issues have raised widespread privacy concerns that have significantly slowed down the growth of the entire genetic testing industry,\u201d said Nebula Genomics founder and Professor of Genetics at Harvard Medical School, George Church. \u201cThis is a big problem because personal genomics can create a lot of value for the individuals who get tested. Furthermore, if the data is shared with researchers it will enable us to better understand human genetics and possibly help cure diseases.\u201d<\/p>\n\n\n\n


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Consumers need new solutions that provide the benefits of using data at scale without the risk of their data being copied, stolen, or used for ulterior purposes. That\u2019s why Oasis Labs and Nebula Genomics are partnering to give users first-of-its-kind control of their personal genomic data. Sign up for the beta today<\/a>.<\/p>\n\n\n\n

The Solution<\/h2>\n\n\n\n

Nebula Genomics was founded on the principles of delivering a privacy-first genetic test to market, and now in partnership with Oasis Labs, they\u2019re taking things one step further by leveraging Oasis Lab\u2019s new privacy product, Parcel. <\/p>\n\n\n\n

Parcel is a set of privacy-first, data governance APIs designed to give customers better control and oversight into how their data is used. Parcel\u2019s suite of tools enables developers to: <\/p>\n\n\n\n